DownSyn Forum

Mary Beth · Requesting prayers for my granddaughter (Updated 09-25-09)

My baby granddaughter is scheduled to under go open heart surgery on September 17th to repair her Tetrology of Fallot heart defect. She is 6 months old. The same surgeon who repaired Sammy and Katarina's heart is fixing hers and this make me happy as he is an excellent surgeon and did a really good job on both of my kids. Thank you for your prayers for Veronica Lee.

Mary Beth

Update 09-17-09
The surgery went great. It was only 4 1/2 hours long. A lot shorter then Sam's was 12 years ago. Her color looks fantastic and she is doing really well. They are talking about getting her off the vent as long as she continues to do so well. You know the site of the tubes and wires around her did not bother me this time. I guess I'm getting use to seeing such things now.
Thank you for all your prayers and any additional prayers for her recovery.

Update 09-18-09
They removed the vent last night and they are removing some of the drains and tubes today. She is awake and eating and watching cartoons. They expect to move out of the ICU this evening.
Mary Beth

Another update 09-18-09 4:19 PM ESt
See below. Need prayers Please.

Updated 09-19-09 7:45 PM EST.
See below.

09-20-09
Veronica is doing much better. She is off oxygen and they took out the cath. She still have the feeding tube but she is doing much better. Thank you for all your prayers as they seem to be working.
Mary Beth

Update 09-25-09
Thanks for all your prayers Ladies! Veronica was able to come home yesterday evening. She still has the feeding tube in but she is doing well. Unfortunately when my daughter-in-law was comeing home yesterday from the hospital with the baby she blew a tire getting onto the expressway. My husband and I had to go pick them up. We were unable to change her tire as one of the nuts would not come off. So we drove them to Indiana where my son met up with us to take them the rest of the way home. While we were trying to change the tire the baby got hungry and she actually took the bottle. She did not take the whole thing but it is a start, so hopefully she will be off th feeding tube in a few days.
Thanks again.

Mary Beth Very Happy

_________________
Mom to Rick 30, Stephanie (27), Elizabeth (25), Robby(22), Samuel (12 DS, TOF), Shane ( 11), Katarina (7 DS, AV Canal Defect)

huskies9798 · Posted: September 13 2009, 4:13 PM Post subject:

sending lots of hugs & prayers keep us posted xoxo

_________________
chris
mommy to brooke ds 8-30-04 blake 1-24-07
ss derek 1-19-94

Tigger · Posted: September 14 2009, 8:10 AM Post subject:

Praying for successful surgery and no complications.

_________________
Karyn
Mum to Nikki (Jul 89), Stefanie (Sep 96), Joel [June 98] and Talitha (DS) (Nov 05) AVSD/PDA repaired 23 March 06

"I will praise You, for I am fearfully and wonderfully made; Marvelous are Your works, and that my soul knows very well." Psalm 139:14

JanetG · Posted: September 14 2009, 10:23 AM Post subject:

I will be praying for your granddaughter this week....

_________________
Janet (44) and Jeff (44)
Joshua (angel) '85
Sarah-age 22
Jaret-age 5
Jacey-born 2/22/08 (dx w/ Ds 9/10/07)

Momof6 · Posted: September 14 2009, 10:43 AM Post subject:

Many thoughts and prayers with your granddaughter.

_________________
~Christine~
Mom of 6
Brandon ADD/ADHD 17, Chelsea 14, Connor 12, Logan 6, Cody 4 & Austin 1 ( DS & Hirschsprungs pull through 12/8/08 )
http://www.caringbridge.org/visit/austinpaquin

LinMac · Posted: September 14 2009, 11:13 AM Post subject:

Mary Beth

I will pray for Veronica Lee. You'll be a great support having been down this road before. Hoping the surgery goes well and your granddaughter makes a speedy recovery.

_________________
Linda & John
mom to Hannah Kate (Age 12 ), Robert (Aged 6 - DS)

First day at school

shea01 · Posted: September 14 2009, 12:02 PM Post subject:

I just said a prayer.

_________________
www.1familytogether.blogspot.com

momlorac · Posted: September 14 2009, 1:55 PM Post subject:

saying a prayer

_________________
Carol mom to Adam 6/17/96 ,Emily 8/7/98, Abigail (DS)8/16/04

pumpkinator · Posted: September 15 2009, 3:21 PM Post subject:

Veronica Lee, may you be safely carried through this surgery. I pray for a good outcome and quick recovery.

Stephanie · Posted: September 16 2009, 6:07 PM Post subject:

oh MArybeth! I will keep your grand daughter in my prayers! Please update us and let us know how it goes. HUGS to you and your family tonight.

_________________

Joey 3/8/97
Megan, DS 11/8/03
Olivia 7/6/05

Mary Beth · Posted: September 17 2009, 5:49 PM Post subject:

Update is on the original post.
Mary Beth

_________________
Mom to Rick 30, Stephanie (27), Elizabeth (25), Robby(22), Samuel (12 DS, TOF), Shane ( 11), Katarina (7 DS, AV Canal Defect)

JanetG · Posted: September 18 2009, 7:44 AM Post subject:

So glad everything went well... Continued prayers for a speedy recovery...

_________________
Janet (44) and Jeff (44)
Joshua (angel) '85
Sarah-age 22
Jaret-age 5
Jacey-born 2/22/08 (dx w/ Ds 9/10/07)

Mary Beth · Posted: September 18 2009, 11:19 AM Post subject:

Another update in the first post.
Mary Beth 09-18-09

_________________
Mom to Rick 30, Stephanie (27), Elizabeth (25), Robby(22), Samuel (12 DS, TOF), Shane ( 11), Katarina (7 DS, AV Canal Defect)

Momof6 · Posted: September 18 2009, 11:58 AM Post subject:

Glad to hear she is doing well. Thoughts and prayers with her.

_________________
~Christine~
Mom of 6
Brandon ADD/ADHD 17, Chelsea 14, Connor 12, Logan 6, Cody 4 & Austin 1 ( DS & Hirschsprungs pull through 12/8/08 )
http://www.caringbridge.org/visit/austinpaquin

Mary Beth · Posted: September 18 2009, 3:29 PM Post subject:

09-18-09 4:19 PM EST.
I need urgent prayers for my grand daughter. My son just called to tell me she had a two minute long seizure and they are taking her down stair to find out why. He was on his way back up to the hospital. My daughter-in-law witnessed the seizure and she is really upset right now.
Everything was going so well and now this. Please say some prayers for Veronica.

Thanks.
Mary Beth

_________________
Mom to Rick 30, Stephanie (27), Elizabeth (25), Robby(22), Samuel (12 DS, TOF), Shane ( 11), Katarina (7 DS, AV Canal Defect)

Helen · Posted: September 18 2009, 3:44 PM Post subject:

Will do. Praying this is just a minor hitch and not anything serious, x

_________________
Helen

Mum to ...
Rachael Kinza (25/07/01), Matthew Isaac - DS & Autism - (14/06/03) and Hannah Cerys (14/06/05) - my gorgeous kids!

burnsun · Posted: September 18 2009, 3:59 PM Post subject:

Awesome!!!!!!!!!!!!!!!!!!!!!!

_________________
Jane
mom to
Colin Miguel (11/19/00) DS
Devon Richard(4/13/01) DS & Autism
Melea Isabelle(2/13/02) DS
Adrian Elliott (7/04/03)
Eliza Marisol (5/15/04) DS
Miranda Olivia (2/1/05) DS & Partial Complex Seisure Disorder & iratractable epilepsy
Jordan Alexander(3/17/2007)
Emerson James (1/08/2009) 33 week preemie

wife to the best & greatest guy Eric

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read about the daily adventures of Princess grumpy and her special siblings and their daily adventures

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the family blog of our unique & special family

Mary Beth · Posted: September 18 2009, 10:26 PM Post subject:

I just got back from the hospital. They said she had a small brain bleed and that probably caused the seizure. It was actually more like five minutes long according to the nurse. I was there when they did an EEG on her and they did not observe any further seizure activity. They will be doing a Cat scan in the morning. They did not notice any neurological damage but put her on seizure medication (Capra sp) and told us she will probably be on it for about six months, but once the blood is reabsorbed she shouldn't have any more trouble but she should be on the medication for about 6 months.
She was doing better when I left. Thanks for your prayers.
Mary Beth

_________________
Mom to Rick 30, Stephanie (27), Elizabeth (25), Robby(22), Samuel (12 DS, TOF), Shane ( 11), Katarina (7 DS, AV Canal Defect)

Mary Beth · Posted: September 19 2009, 7:00 PM Post subject:

09-19-09 7:45 pm.

They told me Veronica had to be re catherized as she isn't peeing and they had to put in a feeding tube because she can keep anything down. The Cat Scan did not show any additional bleeding so that was good.
It appears she will have a longer then expected stay in the ICU.
Your continued prayers are appreciated.
Mary Beth

_________________
Mom to Rick 30, Stephanie (27), Elizabeth (25), Robby(22), Samuel (12 DS, TOF), Shane ( 11), Katarina (7 DS, AV Canal Defect)

JanetG · Posted: September 20 2009, 12:13 AM Post subject:

Continued prayers here... Hoping they get things straightened out soon.

_________________
Janet (44) and Jeff (44)
Joshua (angel) '85
Sarah-age 22
Jaret-age 5
Jacey-born 2/22/08 (dx w/ Ds 9/10/07)

Mary Beth · Posted: September 20 2009, 8:58 PM Post subject:

09-20-09
Veronica is doing much better. She is off oxygen and has the cath. out. She still have a feeding tube but is doing so much better. They have moved her out of the ICU.
Thank you very much for all your prayers.
Mary Beth

_________________
Mom to Rick 30, Stephanie (27), Elizabeth (25), Robby(22), Samuel (12 DS, TOF), Shane ( 11), Katarina (7 DS, AV Canal Defect)

ajbest · Posted: September 21 2009, 5:42 AM Post subject:

so glad to hear that Veronica is improving daily. hope she can get home soon! aj & Janna

_________________
Momma to Janna Macie (CAVCanal/Mitral Valve Repair-T21-02/02/05)
Wife to Joseph (TOF & still thriving)

"Where there is charity and wisdom, there is neither fear nor ignorance." St. Francis of Assisi

"God has not always answered my prayers. If He had, I would have married the wrong man several times." Ruth Bell Graham

Mary Beth · Posted: September 23 2009, 5:00 PM Post subject:

They put the feeding tube back in again as she is not tolerating her feeds right now. Did anyone else have problems getting there child to eat again after heart surgery? If so how long did it take to get them to take the bottle again.
Mary Beth

_________________
Mom to Rick 30, Stephanie (27), Elizabeth (25), Robby(22), Samuel (12 DS, TOF), Shane ( 11), Katarina (7 DS, AV Canal Defect)

LinMac · Posted: September 24 2009, 6:00 AM Post subject:

Mary Beth

I've no experience so I can't be of help right now.
Sorry the recovery is taking longer than expected for Veronica and yourselves.

Just wanted you to know I am sending support prayers from Dublin for Veronica.

_________________
Linda & John
mom to Hannah Kate (Age 12 ), Robert (Aged 6 - DS)

First day at school

Mary Beth · Posted: September 25 2009, 3:40 PM Post subject:

Thanks for all your prayers Ladies! Veronica was able to come home yesterday evening. She still has the feeding tube in but she is doing well. Unfortunately when my daughter-in-law was comeing home yesterday from the hospital with the baby she blew a tire getting onto the expressway. My husband and I had to go pick them up. We were unable to change her tire as one of the nuts would not come off. So we drove them to Indiana where my son met up with us to take them the rest of the way home. While we were trying to change the tire the baby got hungry and she actually took the bottle. She did not take the whole thing but it is a start, so hopefully she will be off th feeding tube in a few days.
Thanks again.

Mary Beth

_________________
Mom to Rick 30, Stephanie (27), Elizabeth (25), Robby(22), Samuel (12 DS, TOF), Shane ( 11), Katarina (7 DS, AV Canal Defect)

AliMama · Posted: September 25 2009, 10:10 PM Post subject:

Glad they (eventually) made it home safely. Continued prayers for her speedy recovery--

_________________
Maresa,
Mom to Alisa (10-29-2008) DS, complete AV canal repair on 3-6-09

LinMac · Posted: September 26 2009, 12:28 PM Post subject:

Great update Mary Beth....Thanks!

_________________
Linda & John
mom to Hannah Kate (Age 12 ), Robert (Aged 6 - DS)

First day at school