DownSyn Forum

hi ruthie,

my son had a few tongue bites of his own when he started walking!! he doesn't have a protruding tongue either, but when he really concentrates on something he does stick it out. we tr ...

hi libby,

sounds like we are in the same boat! i am also expecting my second child, but am due in october. i opted not to have the afp test done, but i did see a perinatologist who did a level 2 ...

we also had a problem with reflux with zach. the gi doctor first put him on zantac which helped a bit, but after a few months he absolutely refused to take it. ( i can't blame the kid. what kid woul ...

hi christina,

i can give you my advice as a mom & a pharmacist!! Smile

i would stress two things. the first is don't over use laxatives because ,like someone else already said in their post, yo ...

way to go abigail!!!
it's great that she is motivated by the other kids at daycare. just goes to show how important "inclusion" is for our kids so they can have role models to help motivat ...

hey everyone,

we have been using some basic signs with zach since he was less than a year old. at first he would just watch us then in time he started mimicing us. all of the sudden one day when ...

hi everyone,

haven't posted in a while, but we are doing fine. this summer zach started walking & using sign language!! he amazes me everyday with his accomplishments.

the question i have ...

hi scott & karen,

congratulations on the birth of your baby boy!!
i nursed my son zach until he was about 13 months. he did sleep alot when he was little, but i don't know if that is normal b ...

i saw a commercial last night for walmart that was the best (but of course it made me cry)!!!! it was about the buddy walk. (for those unfamiliar with the buddy walk it is a walk that i think was orig ...

what a darling little girl!!! i love the fancy holiday attire!

another little cutey pie!! i love her hair!!

both of your daughters are beautiful!!! you are a lucky dad!

what a happy little guy! those big eyes just melt your heart!!!

what a handsome guy!!! he looks like a little man!! i love the big blue eyes!!

what a cutey pie!!!! i could just squeeze those chubby cheeks!!

i'm not familiar with ITI, but we do work on oral motor skills with our son. he is 16 months old now but his therapists have shown us many things over the past year to stimulate the mouth muscles. t ...

what tom said is very true. i am a pharmacist & it is very important to tell all doctors & pharmacists that your daughter is on propulsid each time they prescribe something new for her. it w ...

hi cammy,

i agree with everything marg said, you are definitly not being overprotective! our pediatrician is not very agressive with my son's treatment either. if i ask them they will do things ...

great minds must think alike!!!
i too have been thinking about the little pinto but was afraid to inquire for fear of what the response might be.
i am so glad for them that everything is going well! ...

hi kc,

my son zach is 13 months old & i wonder about all of the same things you are!! i sometimes question if i am in denial about him having ds too! what i try to do is not to concentrate on ...

hi ellen & erik,

first of all, best wishes for your baby!!

secondly, i just want to agree with everything that vonda said!! although my son zach is not mosaic, most people think that he is. ...

amy,

what a handsome little guy!!! or should i say big guy?!?
i'm glad to hear emmitt is healthy, he looks like he is doing good.

best wishes,

jef,

it is amazing how time can help you heal. i am so happy for you to have gained some peace in your heart, but at the same time sad for what your son is going through.

your family will be ...

i got the best gift this new years!!

zach sat up all by himself on new years day!!!!!!

he had been trying for days & kept on getting very close, then would plop back down again.

we are ve ...

diane,

i am so jealous! it sounds like you have a great pediatrician. besides telling us zachs diagnosis of down syndrome over the phone, the first pediatrician we went to told us nothing but jus ...

hello cindy & best wishes for your unborn bundle of joy!

my son zach latched on right away & has been nursing fine ever since! like everyone has said, the biggest factor of being able to b ...

i'm so glad to hear you guys express your feelings about being drawn to other families who have children with down syndrome. i thought i was crazy for having sort of a magnetism that i would want to ...

hello all,

i had a strange day yesterday. while out christmas shopping i was approached on two separate occassions by complete strangers & they started asking questions about zach. i was start ...

hi joan,

it has also been a struggle for me at times to tell people about my son having ds. when i have been very open & honest about it with people, they have always had a very positive react ...

hi michele,

it sounds like we have alot in common! i am also a first time mom to a son named zachary. he was born february 13, 2000 and like your daughter has been very healthy thus far. his diag ...

go emma!

i'm so glad that these therapies are available to are kids. i have also learned alot of things that zach is capable of doing from his physical therapist. little things like when to introd ...

hello,

my name is pam & i have a 10 month old baby named zach with down syndrome. when i was pregnant my husband & i opted not to get the blood tests done to test for ds. i figured that i ...

hi dena,

my son zach is enrolled in a state program called early intervention. (we live in nj) this is a program that provides pt, ot, speech therapy, etc. to kids based on physical or mental nee ...

thanks everyone for your words of wisdom! i know that as time passes i will be better able to handle situations with zach. it is a long road ahead that many of you have already been traveling for so ...

hi apple!

my son zach is 9 months old & i am just starting to get a handle on all of the initial (overwelming amount of!!) information. you want to make sure your providing every possible oppo ...

hi it's me again!

i just want to say that in no way am i embarrassed or ashamed that zach has ds. i am very open about it when people know. everyone likes to hear how he's progressing & he is ...

hi all,

my name is pam & i have an 8&1/2 month old son named zach with down syndrome. thankfully, he has been very healthy & is making great progress. but....

i need some advice fr ...